Date: July 14, 2023 - July 16, 2023
Time: 11:49 am  to  2:00 pm

Reaching New Heights Together

The National Foundation for Ectodermal Dysplasias (NFED) Family Conference welcomes everyone affected by ectodermal dysplasias and their loved ones. Join us for three days of learning, growing and bonding over life with ectodermal dysplasias!

Join Us July 14-16, 2023

The 2023 Family Conference kicks off on Friday, July 14 and wraps up on Sunday, July 16, 2023. The event will take place at the Omni Interlocken Hotel, in Broomfield, CO. 

Registration for the 2023 Family Conference will open in mid-January, 2023. Please email Kelley at with any questions.

Conference Details

Family Conference is such an amazing experience for everyone who attends. We can’t wait to come together to learn, support each other and have some fun!

For those who cannot join us in Colorado, we are excited to announce a virtual option in 2023! You can join us live during conference and/or access the recorded sessions following our Conference weekend.


Includes Friday dinner; Saturday breakfast, lunch and dinner; Sunday breakfast and lunch; and Kays’ Kids Camp and Teens Program activities. Each paid registration will receive a Conference T-shirt.

Early Registration (before June 1)

In-Person, Adult (18 and older) – $185
In-Person, Children (birth – 17) – $125
Virtual – $100

Late Registration (after May 31)

In-Person, Adult (18 and older) – $260
In-Person, Children (birth – 17) – $200


A room block has been reserved at the Omni Interlocken Hotel in Broomfield, CO. The cost of lodging is not included in your conference registration fees. Our group rate is $209 per night plus taxes and fees. To secure the group rate, you must make your reservation by 5 p.m. Mountain Time on Monday, June 12, 2023.

Book your room online or by calling 800-THE-OMNI (800-883-6664) and ask for the NFED 2023 Family Conference block.


Apply for a golden ticket to attend the 2023 Family Conference! Bev Meier’s Golden Ticket Scholarships will be available again in 2023 to help those with financial need attend the conference. Apply online at time of registration. Registration with your completed application must be received by Friday, March 31, 2023 to be considered for a scholarship. However, funding is limited so we encourage you to apply soon!


After being able to come back together in-person at last year’s conference, we can’t wait to see all of your smiling faces again! At the 2023 Family Conference, attendees will enjoy:

  • Family Pool Party.
  • Kays’ Kids and Teens Camp.
  • General sessions on topics like dermatology concerns; ear, nose and throat issues; and genetics,
  • Syndrome-specific group sessions.
  • Updates on the latest research developments.

Find your NFED family at our Family Conference.

We’ve designed the conference as a way for families and individuals affected by ectodermal dysplasias to develop a support network of others affected by similar conditions. Our caring staff and volunteers roll out the welcome mat for new attendees, and familiar faces return for a big, happy family reunion.

You’ll also be able to meet with medical and dental experts, talk with them one-on-one, and ask questions. You can use these unique opportunities to discuss recommended treatment options and ways to cope with the emotional challenges of ectodermal dysplasias.

At the Family Conference, you’ll learn how to advocate for yourself, for your loved ones, and for the entire ectodermal dysplasias community.

Kays’ Kids Camp And Teens Program

Kays’ Kids Camp is available for children who are infants to those who will be in 8th grade in the fall of 2023. The Teens Program is for those who will be in 9th through 12th grades in the fall of 2023. Both programs include fun, age-appropriate workshops, entertainment, arts and crafts, and social time with others who are affected by ectodermal dysplasias or who have siblings that are.

Many thanks to the Louis J. and June E. Kay Foundation for sponsoring these programs!


Interested in sponsoring the 2023 Family Conference? Please reach out to NFED executive director, Mary Fete at for the details and open opportunities.